*CRPD adopts the List of Issues on Australia, Austria and El Salvador (April 2013) and schedules the constructive dialogue with these States for the upcoming 10th session (September 2013)
*CRPD schedules adoption of List of Issues on Azerbaijan, Costa Rica and Sweden for the upcoming 10th session (September 2013)
Convention on the Rights
of Persons with Disabilities
Distr.: General
19 October 2011
Original: English
Committee on the Rights of Persons with
Disabilities
Sixth session 19–23
September 2011
Consideration of reports
submitted by States parties under article 35 of the Convention
Concluding
observations of the Committee on the Rights of Persons with Disabilities
Spain
1.The
Committee considered the initial report of Spain (CRPD/C/ESP/1) at its 56th
and 57th meetings (see CRPD/C/6/SR.3 and SR.4), held on 20 September 2011, and
adopted the following concluding observations at its 62nd meeting, held on 23
September 2011.
I.Introduction
2.The
Committee welcomes the initial report of Spain, which was the first State to
submit its initial report to the Committee. The Committee commends the State
party for the written replies to the list of issues raised by the Committee
(CRPD/C/ESP/Q/1/Add.1) and for the comprehensive responses to the questions
posed during the dialogue.
3.The
Committee commends the State party for its delegation, which included among its
members representatives of various Government ministries, including many senior
representatives, as well as two persons with disabilities. The Committee
expresses its appreciation for the spirited and fruitful dialogue held between
the delegation and the members of the Committee.
II.Positive aspects
4.TheCommittee congratulates
the State party for the progress made in many areas related to the rights of persons with
disabilities, including the adoption of Act 26/2011 of 1 August 2011 on
the normative adaptation to the Convention, amending regulations and modifying
several Spanish laws in response to the Convention, and including important
positive action measures in health, housing, employment and other areas.
5.The Committee notes with satisfaction Act 51/2003
on equality of opportunity, non-discrimination and “universal
accessibility” for persons with disabilities as well as its enabling
regulations, in particular the royal decrees providing for basic standards of
accessibility.
6.The
Committee commends the State party for establishing independent monitoring
mechanisms in full compliance with article 33, paragraph 2, of the Convention.
7.The Committee welcomes the
State party’s adoption of the Third Plan of Action for persons with
disabilities, which addresses disability along gender-analysis lines, as well
as the Global Action Strategy for the Employment of Persons with Disabilities
2008-2012, including its first plan of action, covering the years 2008-2010.
8.The Committee commends the State party’s
adoption of itslong-term strategy for persons with disabilities (2012-2020), which includes
objectives for the short and medium term.
9.The Committee commends the
State party for the high percentage (78.35 per cent) of enrolment of children
with disabilities in the regular education system, and for the efforts made to
maintain the funding for programmes for persons with disabilities in times of
economic crisis. In this, Spain
is setting a very important example of fulfilling the purpose of article 4,
paragraph 2, of the Convention. The Committee further welcomes the commitment
of the State party to avoid
reducing social assistance.
10.The
Committee acknowledges the efforts that the State party has made to strengthen
its commitment to international cooperation by allocating earmarked funding for
disability-inclusive development.
III.Principal areas of concern and
recommendations
A.General principles and obligations
(arts. 1 and 4)
11.The
Committee takes note of the adoption of Act 26/2011, which introduces the concept of persons with
disabilities as defined in the Convention and expands the protection of such persons. However, it is concerned that not all persons with disabilities are
covered by the law.
12.The Committee urges the State party to
ensure that all persons with disabilities enjoy protection against
discrimination and have access to equal opportunities irrespective of their
level of disability.
13.The
Committee welcomes Act 49/2007 of 26 December 2007, which establishes the
Permanent Specialized Office to deal with offences and sanctions in the areas
of equal opportunities, non-discrimination and universal accessibility by
persons with disabilities. However, it is concerned by the slow development and
lack of promotion of this arbitration system at the regional government level,
by the lack of information on the number of sanctions submitted and resolved,
and by the failure of the State party to report on actions undertaken to
implement this law. The Committee is concerned about the overall effectiveness
of the system.
14.The Committee recommends that the State
party raise awareness among persons with disabilities about the system of
arbitration, increase the level of free legal aid, and ensure the regulation of
offences and sanctions at the regional government level.
15.The
Committee regrets the lack of information on the meaningful participation of
persons with disabilities and their representative organizations at the
regional level in designing and evaluating the implementation of legislation,
policy and decision-making processes, and on the participation of children with
disabilities at all levels.
16.The Committee recommends that the State party
take specific measures to ensure the active participation of persons with
disabilities in public decision-making processes at the regional level, and to
include children with disabilities at all levels.
17.The
Committee takes note of Act 2/2010 of 3 March 2010 on sexual and reproductive
health, which decriminalizes voluntary termination of pregnancy, allows
pregnancy to be terminated up to 14 weeks and includes two specific cases in
which the time limits for abortion are extended if the foetus has a disability:
until 22 weeks of gestation, provided there is “a risk of serious anomalies in
the foetus”, and beyond week 22 when, inter alia, “an extremely serious and
incurable illness is detected in the foetus”. The Committee also notes the
explanations provided by the State party for maintaining this distinction.
18.The Committee recommends that the State
party abolish the distinction made in Act 2/2010 in the period allowed under
law within which a pregnancy can be terminated based solely on disability.
B.Specificrights (arts. 5-30)
Equality
and non-discrimination (art. 5)
19.The
Committee welcomes the regulatory amendments introduced under Act 26/2011 that would abolish the need to have a disability certificate to bring a
discrimination claim before a judicial body. However it regrets the lack of information
on cases of discrimination, and it is concerned that persons with disabilities
will still be marginalized. The Committee is further concerned by the lack of
information on reasonable accommodation. It is also concerned that, in practice,
disability affects parents’ guardianship or custody of their children and that
legal protection against discrimination on the grounds of disability is not
enforceable in cases of discrimination due to perceived disability or
association with a person with a disability.
20.The Committee urges the State party to expand
the protection of discrimination on the grounds of disability to explicitly
cover multiple disability, perceived disability and association with a person
with a disability, and to ensure the protection from denial of reasonable
accommodation, as a form of discrimination, regardless of the level of
disability. Moreover, guidance, awareness-raising and training should be given
to ensure a better comprehension by all stakeholders, including persons with
disabilities, of the concept of reasonable accommodation and prevention of
discrimination.
Women
with disabilities (art. 6)
21.The
Committee is concerned that public programmes and policies on the prevention of
gender-based violence do not sufficiently take into consideration the particular
situation of women with disabilities. The Committee is also concerned that
employment policies do not include a comprehensive gender perspective and that
unemployment, inactivity and training rates are significantly worse for women
than for men with disabilities.
22.The Committee recommends that the State
party:
(a)Include a
more comprehensive consideration of women with disabilities in public
programmes and policies on the prevention of gender-based violence,
particularly so as to ensure access for women with disability to an effective,
integrated response system;
(b)Include a
gender perspective in employment policies, and particularly specific measures
for women with disabilities;
(c)Elaborate
and develop strategies, policies and programmes, especially in the fields of
education, employment, health and social protection, to promote the autonomy
and full participation of women and girls with disability in society, and to
combat violence against them.
Children
with disabilities (art. 7)
23.The
Committee is particularly concerned at the reportedly higher rates of abuse of
children with disabilities in comparison with other children. The Committee is
equally concerned by the lack of early identification, family interventions and
informed support of children with disabilities, which puts at risk their full
development and ability to express their views; and by the lack of available
resources and coordinated public administration in the social, health and
education services, among others.
24.The Committee recommends that the State
party:
(a)Increase
efforts to promote and protect the rights of children with disabilities, and to
undertake research on violence against children with disabilities, adopting
measures to eradicate this violation of their rights,
(b)Establish
policies and programmes that will ensure the right of children with
disabilities to express their own views;
(c)Develop
coordinated public policies with sufficient resources to ensure inclusive
access to support services that include informed therapeutic, rehabilitation
and habilitation services, and care which covers the health, psychosocial and
education needs of children with disabilities, in particular during early
childhood.
Awareness-raising (art. 8)
25.The
Committee commends the many initiatives taken by the State party to implement
the Convention. However, it notes that more needs to be done to increase
awareness in society, in the media and among persons with disabilities
themselves of the rights of persons with disabilities,
26.The Committee calls upon the State party to
take proactive measures to enhance awareness of the Convention and the Optional
Protocol thereto at all levels, in particular among the judiciary and the legal
profession, political parties, Parliament and Government officials, civil
society, media, and persons with disabilities, as well as among the general
public.
Accessibility
(art. 9)
27.The
Committee takes note that Act 26/2011 introduces regulatory amendments that
will shorten the timelines for meeting accessibility requirements in public
facilities and with respect to goods and services available to the public.
However, it remains concerned at the low level of compliance with these
requirements, in particular at the regional and local levels, in the private
sector, and in relation to existing facilities. The Committee is aware of
situations of discrimination faced by air passengers with disabilities,
including situations of denial of boarding. The Committee reminds the State
party that article 9 of the Convention also requires States to ensure access to
information and communication.
28.The Committee recommends that sufficient
financial and human resources be allocated as soon as possible to implement,
promote and monitor compliance with accessibility legislation through national
measures as well as through international cooperation.
Right
to life (art. 10)
29.TheCommittee welcomes the fact that Act 26/2011 amends regulations to contain
provisions to reflect the right to accessibility when granting informed consent
to medical treatment. It however regrets that guardians representing persons
with disabilities deemed “legally incapacitated” may validly consent to
termination or withdrawal of medical treatment, nutrition or other life support
for those persons. The Committee wishes to remind the State party that the
right to life is absolute, and that substitute decision-making in regard to the
termination or withdrawal of life-sustaining treatment is inconsistent with
this right.
30.The Committee requests the State party to
ensure that the informed consent of all persons with disabilities is secured on
all matters relating to medical treatment, especially the withdrawal of
treatment, nutrition or other life support.
Situations
of risk and humanitarian emergencies (art. 11)
31.The
Committee is concerned at the insufficiency of specific protocols for persons
with disabilities in emergency situations.
32.The Committee calls upon the State party to
review its laws and policies related to emergency situations with a view to
including provisions guaranteeing the security and protection of persons with
disabilities.
Equal
recognition before the law (art. 12)
33.The
Committee notes that Act
26/2011 allows a period of one year following its entry
into force for the presentation of a bill to govern the scope and
interpretation of article 12 of the Convention. The Committee is further
concerned that no measures have been taken to replace substitute
decision-making by supported decision-making in the exercise of legal capacity.
34.The Committee recommends that the State
party review the laws allowing for guardianshipand trusteeship, and take action to develop laws and policies to replace
regimes of substitute decision-making by supported decision-making, which
respects the person’s autonomy, will and preferences. It further recommends
that training be provided on this issue for all relevant public officials and
other stakeholders.
Liberty and security of
the person (art. 14)
35.The
Committee takes note of the legal regime allowing the institutionalization of
persons with disabilities, including persons with intellectual and psychosocial
disabilities (“mental illness”). It is concerned at the reported trend of
resorting to urgent measures of institutionalization which contain only ex post
factosafeguards for the affected
individuals. It is equally concerned at the reported abuse of persons with
disabilities who are institutionalized in residential centres or psychiatric
hospitals.
36.The Committee recommends that the State
party: review its laws that allow for the deprivation of liberty on the basis
of disability, including mental, psychosocial or intellectual disabilities;
repeal provisions that authorize involuntary internment linked to an apparent
or diagnosed disability; and adopt measures to ensure that health-care services,
including all mental-health-care services, are based on the informed consent of
the person concerned.
Integrity
of the person (art. 17)
37.The
Committee is concerned that persons with disabilities whose legal capacity is
not recognized may be subjected to sterilization without their free and
informed consent.
38.The Committee urges the State party to
abolish the administration of medical treatment, in particular sterilization,
without the full and informed consent of the patient; and ensure that national
law especially respects women’s rights under articles 23 and 25 of the
Convention.
Living independently and being included in
the community (art. 19)
39.The
Committee is concerned at the lack of resources and services to guarantee the
right to live independently and to be included in the community, in particular
in rural areas. It is further concerned that the choice of residence of persons
with disabilities is limited by the availability of the necessary services, and
that those living in residential institutions are reported to have no
alternative to institutionalization. Finally, the Committee is concerned about linking eligibility of
social services to a specific grade of disability.
40.The Committee encourages the State party to
ensure that an adequate level of funding is made available to effectively
enable persons with disabilities: to enjoy the freedom to choose their
residence on an equal basis with others; to access a full range of in-home,
residential and other community services for daily life, including personal
assistance; and to so enjoy reasonable accommodation so as to better integrate
into their communities.
41.The Committee is concerned that the law for
the promotion of autonomy limits the resources to hire personal assistants only
to those persons who have level 3 disabilities and only for education and work.
42.The Committee encourages the State party to
expand resources for personal assistants to all persons with disabilities in
accordance with their requirements.
Education
(art. 24)
43.The
Committee welcomes the fact that the principle of inclusion governs the
schooling of pupils with special educational needs; that discrimination in
education is prohibited; and that most children with disabilities are included
in the regular education system. It commends the enactment of Organic Act 2/2006
on education, which obliges the education authorities to provide specialist
teachers, qualified professionals and the necessary materials and resources, as
well as the laws that oblige schools to make necessary curricular adjustments
and diversifications for pupils with disabilities. However, the Committee is
concerned by the implementation of these laws in practice, in view of reported
cases of failure to provide reasonable accommodation, of continued segregation
and exclusion, of financial arguments used as justification for discrimination,
and of the cases of children enrolled in special education against their
parents’ will. The Committee notes with concern that parents challenging the
placement of their children with disabilities in special education have no
possibility of appeal and that their only alternative is to educate them at
their own expense or pay for the reasonable accommodation of their child in the
regular education system.
44.The Committee reiterates that denial of
reasonable accommodation constitutes discrimination and that the duty to
provide reasonable accommodation is immediately applicable and not subject to
progressive realization. It recommends that the State party:
(a)Increase
its efforts to provide reasonable accommodation in education, by: allocating sufficient financial and human
resources to implement the right to inclusive education; paying
particular attention to assessing the availability of teachers with specialist
qualifications; and ensuring that educational departments of local governments
understand their obligations under the Convention and act in conformity with
its provisions;
(b)Ensure
that the decisions to place children with a disability in a special school or
in special classes, or to offer them solely a reduced-standard curriculum, are
taken in consultation with the parents;
(c)Ensure
that the parents of children with disabilities are not obliged to pay for the
education or for the measures of reasonable accommodation in mainstream
schools;
(d)Ensure
that decisions on placing children in segregated settings can be appealed
swiftly and effectively.
Right
to work (art. 27)
45.Despite
a number of enabling provisions to keep persons with disabilities in
employment, the Committee is concerned with the overall low rate of employment
of persons with disabilities.
46.The Committee recommends that the State
party develop open and advanced programmes to increase employment opportunities
for women and men with disabilities.
Participation
in political and public life (art. 29)
47.The
Committee is concerned that the right to vote of persons with intellectual or
psychosocial disabilities can be restricted if the person concerned has been
deprived of his or her legal capacity, or has been placed in an institution. It
is further concerned that the deprivation of this right appears to be the rule
and not the exception. It regrets the lack of information on standards of
evidence or grounds, and criteria used by judges when depriving persons of
their right to vote. It notes with concern the number of persons with
disabilities denied their right to vote.
48.The Committee recommends that all relevant
legislation be reviewed to ensure that all persons with disabilities,
regardless of their impairment, legal status or place of residence, have the right
to vote and participate in public life on an equal basis with others. The
Committee requests the State party to amend article 3 of Organic Act 5/1985,
which allows the denial of the right to vote based on individualized decisions
taken by a judge. The amendment should ensure that all persons with
disabilities have the right to vote. Furthermore, it is recommended that all
persons with disabilities who are elected to a public position are provided
with all required support, including personal assistants.
C.Specific obligations (arts. 31-33)
Statistics
and data collection (art. 31)
49.The
Committee regrets the low level of disaggregated data on persons with
disabilities. The Committee recalls that such information is indispensable to:
understanding the situations of specific groups of persons with disabilities in
the State party who may be subject to varying degrees of vulnerability;
developing laws, policies and programmes adapted to their situations; and
assessing the implementation of the Convention.
50.The Committee recommends that the State
party systematize the collection, analysis and dissemination of data,
disaggregated by sex, age and disability; enhance capacity-building in this
regard; and develop gender-sensitive indicators to support legislative
developments, policymaking and institutional strengthening for monitoring and
reporting on progress made with regard to the implementation of the various
provisions of the Convention.
51.The
Committee regrets that the situation of children with disabilities is not
reflected in the data on the protection of children.
52.The Committee recommends that the State
party systematically collect, analyse and disseminate data, disaggregated by
sex, age and disability, on abuse and violence against children.
Follow-up
and dissemination
53.TheCommittee requests the State
party to implement the recommendations of the Committee as contained in the
present concluding observations. The Committee recommends that the State party
transmit the concluding observations for consideration and action to members of
the Government and Parliament, officials in the relevant Ministries, and members
of relevant professional groups, such as education, medical and legal
professionals, as well as to local authorities and the media, using modern
social communication strategies.
54.The
Committee strongly encourages the State party to involve civil society
organizations, in particular disabled persons’ organizations, in the
preparation of its second periodic report.
55.The
Committee requests the State party to disseminate the present concluding
observations widely, including to non-governmental organizations and
representative organizations of persons with disabilities, as well as to persons
with disabilities themselves and members of their families, in accessible
formats.
Next
report
56.The
Committee requests the State party to submit its second periodic report by no
later than 3 December 2015, and to include therein information on the implementation
of the present concluding observations.
Convention
on the Rights
of Persons with Disabilities
Distr.: General
21 May 2012
Original: English
Committee on the Rights of Persons with Disabilities
Communication No. 3/2011
Views
adopted by the Committee at its 7th session,
16 to 27 April 2012
Submitted by:H.M. (represented by Mr. H-E.G. and Mrs. B.G.)
Alleged victim:The author
State Party:Sweden
Date of communication:6 December 2010
(initial submission)
Document references:Special
Rapporteur’s rule 70 decision, transmitted to the State party on 9 February 2011 (not issued in document form)
Date of adoption of Views:19 April 2012
Subject matter: Refusal to
grant building permission for the construction of a
hydrotherapy poolfor the rehabilitation of a person with a physical
disability on grounds of incompatibility of the extension in question with the
city development plan
Procedural issues: Non-substantiation
of claims;
Substantive
issues:Purpose of the Convention; discrimination on
the basis of disability; reasonable accommodation; general principles enshrined
in the Convention; general obligations under the Convention; equality and
non-discrimination; accessibility; right to life; liberty and security of the person;
living independently and being included in the community; personal mobility;
health; habilitation and rehabilitation; adequate standard of living and social
protection
Articles of the Convention:1; 2; 3;
4; 5; 9; 10; 14; 19; 20; 25; 26 and 28
Articles of the Optional Protocol: 2(e)
[Annex]
Annex
Views of the Committee on the
Rights of Persons with Disabilities under article 5 of the Optional Protocol to
the Convention on the Rights of Persons with Disabilities (7th session)concerning
Submitted by:H.M.(represented by Mr. H-E.G.
and Mrs. B.G.)
Alleged victim:The
author
State Party:Sweden
Date of communication:6 December 2010 (initial submission)
The Committee on the
Rights of Persons with Disabilities, established
under article 34 of the Convention
on the Rights of Persons with Disabilities,
Meeting on19April 2012,
Having concluded its consideration of
communication No. 3/2011, submitted to the Committee on the Rights of Persons with Disabilitiesby Ms. H.M. under the Optional Protocol to the Convention on the Rights of Persons
with Disabilities,
Having taken into account all written
information made available to it by the author of the communication, and the
State party,
Adopts the
following:
Views
under article 5, of the Optional Protocol
1.The author of the communication, dated 6
December 2010, is Ms. H. M., a Swedish national born in 1978. The author claims
to be a victim of a violation by Sweden of her rights under articles
1, 2, 3, 4, 5, 9, 10, 14, 19, 20, 25, 26 and 28 of the Convention on the Rights
for Persons with Disabilities. The Optional Protocol to the Convention entered
into force for Sweden
on 15 January 2009. The author is represented by Mr. H-E.G. and Mrs. B.G..
The facts as presented
by the author
2.1The author has a chronic connective tissue
disorder, Ehlers-Danlos Syndrome (EDS), which has led to hypermobility
(excessive over-flexibility of joints), severe luxations and sub-luxations
(dislocation of joints), fragile and easily damaged blood vessels, weak muscles
and severe chronic neuralgia. She has not been able to walk or stand for the
last eight years, and she has difficulty sitting and lying down. Her impairment
has resulted in her being bedridden for the last two years, which has weakened
her even further. The author cannot take medicines, since she also has atypical
hypersensitivity to medicines.
2.2The author can no longer leave her house or be
transported to hospital or rehabilitation care because of the increased risk of
injuries that may be incurred due to her impairment. The destructive course of
the impairment is still continuing and the only type of rehabilitation that could
stop its progress is hydrotherapy, which in the author’s circumstances would only
be practicable in an indoor pool in her house. Water therapy is recommended for
Ehlers-Danlos Syndrome by specialists. In the author's case, it would improve
her quality of life as, for example, her joints would become more stable, she
would build more muscle, her blood circulation would improve and her pain and
suffering would be alleviated.
2.3On 7 December 2009, the author applied for
planning permission for an extension of approximately 63 square metres to the
house on her privately owned piece of land. The extension would to a large
extent (approximately 45 square metres)[1] be on land where building is not permitted.
2.4On 17 December 2009, the request for building
permission was rejected by the Örebo Local Housing Committee. The author
appealed the decision of the Local Housing Committee to the Örebro County
Council. The appeal was rejected on 3 March 2010. This decision was appealed to
the Karlstad Administrative Court.
On 28 April 2010, the Administrative
Court granted the appeal and referred the author’s
application for planning permission back to the Örebro Local Housing Committee
for a new hearing of the case.
2.5The Administrative Court stated, in particular,
the following:
“Against the background of the fact that the
major part of the remaining plot of land must not be built on, an alternative
placement according to the plan is not possible. […] It has not been stated
that H. M. could meet the need for an exercise pool with a smaller extension in
closer accordance with the plan. As far as the documents of this case go, it is
not a realistic alternative to move to another house where her need for an
exercise pool can be met, or to move to another suitable institution.
Furthermore it is evident from the medical documents that an exercise pool
would be of particularly great importance to the life situation and life
quality of H. M. and that it would also be cost saving for her future care and
attention. With reference to what has now been stated, the Administrative
Court, in a balance of interests in accordance with Chapter 1, § 5 of the
Planning and Building Act, finds that the interests of H. M. to use the land
for the extension in question should have preference over the general public
interest to preserve the area in complete compliance with the detail plan.
Against the background of the extraordinary cause which is the basis for this
evaluation, the Administrative
Court cannot see a risk that an approval would
lead to similar applications for the approval of similar measures on other
properties in the area. Consequently, the grounds referred to by the Local
Housing Committee do not constitute a reason for refusing a building
permission.”[2]
2.6The Municipality of Örebro appealed the
decision of the Administrative
Court to the Administrative Court of Appeal
(Gothenburg) and, on 1 July 2010, the Administrative Court of Appeal refused
the author’s application for planning permission. It stated, in particular, the
following:
“The building permission that H. M. has
applied for goes against the regulations of the detail plan in the sense that
the proposed construction to a large extent (approximately 48 square meters)
will be placed on the so-called “dotted land”, which means on land where,
according to the plan,it is not allowed
to build. Like the County Council has stated, such a construction cannot be
permitted to be built even as a minor divergence from the detail plan with
regard to what is stated in Chapter 8, § 11 of the Planning and Building Act.”[3]
2.7The author petitioned the Supreme Administrative Court (Stockholm) for leave to
appeal the decision of the Administrative Court of Appeal. The author’s
petition was refused on 5 August 2010.
The complaint
3.1The author claims that she has been discriminated
against by the decisions of the State party’s administrative bodies and courts,
since they have failed to take into account her rights to equal opportunity for
rehabilitation and improved health. She has thereby been refused her right to a
worthwhile quality of life. The refusals are based merely on public interest to
preserve the development plan and have become more of a matter of principle,
which has a severe impact on the living conditions of a person with disability.
Furthermore, her house has previously been adapted to her disability-related
needs at a cost of EUR 42,000. The new extension would not be visible from the
street, and the land parcel behind her house, for which the planning permission
has been applied, is thickly wooded, with many bushes and clumps of trees. The
neighbours have also given their consent to the extension. The author argues
that a single departure from the development plan, should the application be
approved, would not be detrimental to the surroundings. Given the exceptional
nature of her case, there would be no risk of repeated similar requests.
3.2The author maintains that the only hope of
rehabilitation is hydrotherapy at home, any other options being excluded, and
encloses two medical certificates dated 29 September 2009 and 28 June 2010 as
documentary evidence that, for her rehabilitation, no alternative to hydrotherapy
at home exists. The author also considers that the health, interest and
well-being of a person with disability come above the public interest of not
allowing any buildings on land that has been marked out as areas which should
not be built on. She also recalls that she is an owner of the piece of land for
which the building permission in question was requested.
3.3The consequences of planning permission not
being granted would result in a significant risk for the author of becoming
bedridden for an indefinite period of time, with severe muscular atrophy,
stretched ligaments, severe dislocations with, inter alia, reduced chest
expansion, which would impede full inhalation and cause acute pain. In the
absence of rehabilitation, the author runs the risk of eventually having to
enter a care institution.
3.4The author requests the Committee to determine
whether the Convention has priority over the decision of the Local Housing
Committee, which was based on the State party’s Planning and Building Act. In
other words, the Committee is requested to decide on whether the author’s needs
for rehabilitation and care due to her disability are of primary consideration
over the public interest as protected by the Local Housing Committee.
State party's
observations on admissibility and merits
4.1On 5 September 2011, the State party provided
its observations on the admissibility and merits of the author’s communication.
It submits that the Planning and Building Act contains provisions concerning
the planning of land and water areas and concerning building. Municipalities
regulate the use and development of land via a detailed development plan. Both
public and private interests are to be considered when issues are addressed
under the Act. A building permit is required for most new buildings and
extensions. In order for a building permit to be granted within an area covered
by a detailed development plan, the planned measures must not contravene the
detailed development plan.
4.2A building permit may be granted for a measure
that involves a minor departure from the development plan, if the departure is
compatible with the purpose of the plan. Examples of what constitutes a minor departure
include a construction that encroaches on protected land by just a few metres,
or that exceeds the maximum building height for structural reasons. The Supreme Administrative Court
considered, in a judgement delivered in 1990, that a measure which involved
construction on 125 square metres of protected land did not constitute a minor departure.
When an authority or court assesses whether a certain measure which departs from
the detailed development plan could be considered a minor departure, both
private and public interests should be taken into account.The author has not claimed that the measure
for which she has applied for a building permit constitutes a minor departure
from the detailed development plan in force. Under such circumstances, the
granting of a building permit is not possible under the Planning and Building
Act.
4.3According to the Health and Medical Services
Act, the obligation to offer good health and medical services is incumbent on
county councils. The obligation includes, inter alia, offering rehabilitation
and supplying assistive devices for persons with disabilities. These measures
should be planned in consultation with the individual. A patient should always
be offered treatment, where a scientifically proven, tried and tested treatment
is available. When several treatment options are available, the patient should
be given the option of choosing the treatment he or she prefers. However, in the
case of multiple treatment options, the benefits of a certain treatment must be
weighed against its cost. The Discrimination Act contains provisions concerning
the prohibition of discrimination connected with disabilities.
4.4The State party states that in November 2009,
the author applied to Örebro
Municipality for a
building permit to build an extension on land of which large parts are
protected under the detailed development plan. The extension would cover
approximately 65 square metres (45 square metres of which on protected land)
and contain a hydrotherapy pool for rehabilitation. She requested an exemption
from the prohibition on building under the applicable development plan, with
reference to her complicated health situation. She submitted medical
certificates from a doctor for the purpose of corroborating her need for a hydrotherapy
pool. The doctor in question does not work for the county council. In a
supplementary document to her application for a building permit, she stated
that the proposed location of the planned extension was the only possible
location on the property, primarily for functional reasons.
4.5In December 2009, the Municipality rejected the
author’s request, considering that the extension would not constitute a minor departure
from the development plan. In January 2010, the author filed an appeal to the
County Administrative Board, arguing that there were exceptional grounds for granting
a building permit, given her health problems, and referred to documentation
submitted previously. The documents stated that a pool of the specified size is
necessary for the alleviation of her symptoms and rehabilitation. The author
also submitted that she has practically no opportunity to leave the property
due to the high risk of infection and mobility problems. In March 2010, the
County Administrative Board rejected her appeal on the grounds that the measure
contravenes the provisions of the development plan and the departure from the
plan is of a type and size that cannot be considered minor.
4.6The author appealed against this decision to
the Administrative Court
in Karlstad,
maintaining that hydrotherapy in a pool in her home environment is the only
possibility of improving her situation. She claimed that transportation by
ambulance to other hydrotherapy facilities is not an option, as ambulance staff
are unwilling to transport her due to her fragile condition; nor can she move
out, since she is dependent on her parents, who live nearby. She added that the
extension would not be visible from the street, affect the overall appearance
of the area or alter its character. In April 2010, the Administrative Court overturned the
decision of the municipality, and the case was referred back to the
municipality for new consideration. The Court found that the author’s interest
in using the land for the extension in question should take precedence over the
public interest in maintaining the area entirely in accordance with the development
plan. The judgement was not unanimous.
4.7In May 2010, Örebro Municipality
appealed against the judgement to the Administrative Court of Appeal in
Gothenburg. In July 2010, the Administrative Court of Appeal overturned the
judgement of the Administrative Court, and upheld the decision of the
Municipality and the County Administrative Board, stating that the
decision-making authorities and courts cannot disregard existing legislation
and other provisions when assessing a building permit matter, that the building
permit for which the author had applied contravenes the development plan and that
such a measure cannot be considered a minor departure from the plan. The judgement
was adopted unanimously.
4.8In July 2010, the author appealed against the
decision of the Administrative Court of Appeal to the Supreme Administrative Court, claiming
that the decision to reject her application was not reasonable or proportionate
to the damage caused to her. She maintained that her need for a hydrotherapy
pool outweighs the interest of following the existing development plan. On 5
August 2010, the Supreme
Administrative Court decided not to grant leave to
appeal, whereby the decision to reject the author’s application became final
and not subject to further appeal.
4.9With regard to the admissibility of the
communication, the State party submits that it is not aware of the present
matter having been or being examined under another procedure of international
investigation or settlement and acknowledges that all domestic remedies have
been exhausted, as required by article 2(c) and 2(d) of the Optional Protocol.
However, it maintains that the author’s claims fail to rise to the basic level
of substantiation required for purposes of admissibility and should be declared
inadmissible pursuant to article 2(e) of the Optional Protocol.
4.10On the merits, the State party
notes the author’s claims that she has been discriminated against as a result
of negative decisions adopted by the Swedish authorities and courts because her
right to rehabilitation and good health has not been taken into consideration,
and the principle of proportionality has not been applied. The State party
further submits that the burden of proof for an alleged violation of the
Convention, at least initially, rests with the author. This includes the onus
of demonstrating the existence of the circumstances invoked in support of the
complaint. It also points out, with reference to the request that the author be
granted a building permit, that the Committee does not have the authority to
overturn a judgement by a Swedish
Court or a decision by a Swedish authority. Nor
does it have the power to replace the domestic judgement or decision with a
decision of its own. The Committee can only conclude either that the circumstances
of the case reveal a violation of the Convention or that there has been no such
violation.
4.11The State party maintains that
the author has merely referred to a number of articles of the Convention
without advancing grounds for how her rights under these articles have been
violated. Therefore, it can only explain in general terms how Swedish
legislation relates to and fulfils the requirements contained in the articles
that may be relevant in this case. Other articles referred to by the author do
not have a bearing on the present case and the State party would not submit any
comments with regard to them.
4.12Article 5 of the Convention
prescribes that all persons are equal before and under the law and prohibits
any discrimination on grounds of disability. This is a fundamental and clear
premise in Swedish legislation and follows from the Swedish Constitution. The
relevant Act in this case, the Planning and Building Act, is applied in the
same way to all, whether they have disabilities or not. Nor are there any clauses
in the Act that might lead indirectly to discrimination against persons with
disabilities. The rejection of the application for a building permit in this
case is in no way due to the author’s disability, but rather consistent with
practice that applies equally to all.
4.13As to the author’s claim under
article 19 of the Convention, there is nothing in Swedish legislation to
prevent persons with disabilities from choosing their place of residence or way
of life. All measures offered at municipal level, e.g. service accommodation,
are non-compulsory for individuals. A number of alternative measures are
available from municipalities in order to make it easier for individuals with
specific needs to live in their own homes, e.g. contribution to home
adaptation, personal assistance and home help.
4.14With regard to the claims under
articles 25 and 26 of the Convention, the State party recalls that in Sweden
county councils have the obligation to provide health and medical services,
including rehabilitation, to everyone who is resident in the county council
area. Accordingly, it is not the application of the Planning and Building Act
that should secure the author’s rights in accordance with articles 25 and 26 of
the Convention. Instead, these rights should be fulfilled by way of the county
council carrying out its obligations according to the Health and Medical
Services Act. The State party maintains that it must be up to the author to
account for her contacts with the county council and for the treatment she has
been offered, for example by submitting relevant medical documentation.
However, she has not made any such submissions in this regard. In the absence
of an account by the applicant on this issue, the State party assumes that the author
has been offered treatment in accordance with her needs. The author has not
substantiated her allegation that she cannot obtain adequate care if she is not
allowed to build a hydrotherapy pool in accordance with her request for a
building permit.
4.15In the light of the foregoing,
the laws applied in the present case are not discriminatory. The decisions and
judgements delivered by domestic authorities were not motivated by the author’s
disability and are therefore not discriminatory within the meaning of article 5
of the Convention. Moreover, none of these decisions violates article 5 or any
other provisions of the Convention in any other way.
4.16In conclusion, the State party
submits that the present communication does not reveal a violation of the Convention.
Since the author’s claims under various articles of the Convention fail to rise
to the basic level of substantiation, the communication should be declared
inadmissible for lack of substantiation.
Author's comments on the State party's observations
5.1On 14 November 2011, the author provided her
comments on the State party’s observations on admissibility and merits.
5.2The author claims that the refusal to issue
building permission amounts to discrimination, since all possible avenues of recourse
that might ensure her rehabilitation, as a “functionally disabled person”, have
been exhausted. The opposition to the construction of a hydrotherapy pool in
connection with the adapted accommodation in her home would deprive her of treatment
absolutely necessary for her health condition. She submits that the application
of laws and regulations which appear to be neutral has proved to be unfair
towards her and will have an indirect effect of discrimination. The fact that a
Swedish “functionally disabled citizen” cannot obtain the lawful right to adequate
rehabilitation, through an application for building permission for special
adaptation of her home, will amount to a violation of the Convention.
5.3The author notes that the State party in its
observations contends that no violation of the Convention has taken place, and
refers to a building permission case from 1990 which received a negative
decision against a departure from the plan of an area of 125 square metres– a considerablylarger area than the building extension of 45
square metresrequested by her.The author questions the
relevance of the reference to a case dating from 1990, on a matter of a
completely different kind. She claims that, in her case, a restrictive
interpretation of the Building Act of 1987 regarding protected land has been
applied.
5.4The author further notes that, notwithstanding
the magnitude of the departure from the plan in the building permission, there
is still a requirement for life-enhancing circumstances for a “functionally disabled
person” with a rightful claim to equality with regard to quality of life. Claims
for the applicability of the principle of proportionality can be made in a case
where the purpose and interest of the individual would strongly outweigh the
interests of society at large. A nominally larger departure from the Planning
and Building Act can probably be regarded as relatively small from the point of
view of society, while it would be of vital importance in ensuring her quality
of life, including her right to good health.
5.5It is right that both the Planning and Building
Act and the Health Act are stipulated, to uphold the building regulations and
health rights relating to citizens with regard both to building norms and
health laws. However, the author claims that her rights as a “functionally disabled
person” cannot be accommodated via the national health laws. Since a departure
from the Planning and Building Act is not permitted for the specific purpose, a
disabled person is not being provided with proper health care appropriate to
his/her condition. As a result, the “functionally disabled person” in question is
exposed to discrimination, since no measures have been taken in order to comply
with her right to good health care.
5.6According to the author, due to the degree of
disability and the state of her health, her right to rehabilitation, as set out
in articles 25 and 26 of the Convention, can only be secured by way of an
application for building permission. In the author’s opinion, the extent of the
State party’s reliance on the national health laws is of little concern when
the obvious need of a person with a disability cannot be met through the
interpretation and application of these laws.
5.7With regard to the State party’s argument that
everyone is equal before the law, the author submits that it must be possible
to apply the law in such a manner that no one in society suffers. She claims
that, by ratifying the Convention, the State party has undertaken to provide
for the rights of persons with disabilities.
5.8As to her health situation, the author submits
that the doctor who issued the certificate has his own practice and is
connected to the County Council. She further claims that relevant medical
documentation was supplied with the application for the building permission.
This doctor visits her regularly since she is no longer able to go to the
County Council’s institutions for health care and rehabilitation due to her
seriously reduced functional ability. Information as to her psychological condition,
as well as the medical measures warranted, was provided with the application
for building permission and with the subsequent appeals. The national health
laws referred to by the State party cannot be claimed to apply to the author’s
case.
5.9The author has also provided a supplementary
medical report issued by the Head of the Neurology Clinic of the Örebro University
Hospital on 24 October
2007. According to the report, the author’s “condition is hereditary and
medically untreatable. Different types of aids can be offered but they must
always be adapted to the situation of the patient […] Treatment is also often
required in the home since the patient cannot be moved to different
institutions for treatment. This leads to higher costs of living and handicap compensation
can therefore come into question when an assessment has been completed”.[4] The author concludes that treatment at home was previously prescribed
in 2007 and that, in order to maintain the muscular structure, protect the
connective tissue and reduce the pain which cannot be treated with medicine,
her last resort is rehabilitative hydrotherapy at home. Her already limited
anatomical ability would not allow for any other form of treatment. The right
to the claims of the National Health law can only be fulfilled by allowing a
specific departure from the plan in the building permission for her special
needs.
State
party’s further observations
6.On 10 January 2012, the State
party informed the Committee that it maintains its observations on admissibility
and merits of the communication, as submitted to the Committee on 5 September
2011.
Issues
and proceedings before the Committee
Consideration of
admissibility
7.1Before considering any claims
contained in a communication, the Committee on the Rights of Persons with
Disabilities must, in accordance with rule 65 of its rules of procedure, decide
whether or not it is admissible under the Optional Protocol to the Convention.
7.2The
Committee has ascertained, as required under article 2(c) of the Optional Protocol, that the
same matter has not
already been examined by the Committee or has been or is being examined under another procedure of international investigation or
settlement. The Committee notes
that no objectionhas been raised by the State party in connection with the exhaustion of
domestic remedies and considers that the requirements
of article 2(d) of the Optional Protocol have been met.
7.3The Committee considers that articles 1 and 2 of the Convention, in view
of their general character, do not in principle give rise to free-standing
claims under the Convention, and therefore can be invoked in the framework of
individual communications under the Optional Protocol only in conjunction with
other substantive rights guaranteed under the Convention. In the circumstances
of the present communication, the Committee considers that this part of the
communication is inadmissible under article 2(e) of the Optional Protocol.
7.4The Committee notes that the
author has invoked a violation of article 9 of the Convention (accessibility),
10 (right to life), 14 (liberty and security of the person), 20 (personal
mobility), without however providing further substantiation as to how these
provisions may have been violated. Therefore, the Committee considers that
these claims are insufficiently substantiated, for purposes of admissibility,
and are thus inadmissible under article 2(e), of the Optional Protocol.
7.5The Committee considers that the author’s remaining allegations under
articles 3, 4, 5, 19, 25, 26 and 28, of the Convention, have been sufficiently substantiated, for purposes of admissibility,
and proceeds to their
examination on the merits.
Consideration of the
merits
8.1The Committee on the Rights of Persons with
Disabilities has considered this communication in the light of all the
information received, in accordance with article 5 of the Optional Protocol and
rule 73, paragraph 1, of the Committee’s rules of procedure.
8.2The Committee takes note of the
author’s allegations of discrimination in view of the fact that the State party’s
competent authorities, when considering her application for permission to build
a hydrotherapy pool that would meet her rehabilitation needs, failed to apply
the principle of proportionality and weigh her interests in using the plot of
land that she owns for the construction of the hydrotherapy pool against the
general interest in preserving the area in question in strict compliance with
the development plan. It further notes the State party’s argument that the Planning
and Building Act is applied equally to all, whether the person has a disability
or not, and that the Act contains no clauses that would indirectly lead to
discrimination against persons with disabilities.
8.3The Committee recalls, with
reference to article 2, paragraph 3, of the Convention, that “‘discrimination on the basis of
disability’ means any distinction, exclusion or restriction on the basis of
disability which has the purpose or effect of impairing or nullifying the
recognition, enjoyment or exercise, on an equal basis with others, of all human
rights and fundamental freedoms in the political, economic, social, cultural,
civil or any other field.” The Committee
observes that a law which is applied in a neutral manner may have a discriminatory
effect when the particular circumstances of the individuals to whom it is
applied are not taken into consideration. The right not to be discriminated
against in the enjoyment of the rights guaranteed under the Convention can be
violated when States, without objective and reasonable justification, fail to
treat differently persons whose situations are significantly different.
8.4The definition of
discrimination on the basis of disability in article 2, paragraph 3, of the
Convention explicitly states that “it includes all forms of discrimination, including
denial of reasonable accommodation”. Additionally, article 2, paragraph 4,
defines reasonable accommodation as “necessary and appropriate modification and
adjustments not imposing a disproportionate or undue burden, where needed in a
particular case, to ensure to persons with disabilities the enjoyment or
exercise on an equal basis with others of all human rights and fundamental
freedoms”.
8.5In the present case, the
information before the Committee shows that the author’s health condition is
critical and access to a hydrotherapy pool at home is essential and an
effective – in this case the only effective – means to meet her health needs. Appropriate
modification and adjustments would thus require a departure from the development plan, in order to allow
the building of a hydrotherapy pool. The Committee notes that the State party has
not indicated that this departure would impose a “disproportionate or undue
burden”. In this connection, the Committee notes that the Planning and Building
Act allows for departure from the development plan, and that it can thus accommodate, when necessary
in a particular case, an application for reasonable accommodation aimed at
ensuring to persons with disabilities the enjoyment or exercise of all human
rights on an equal basis with others and without any discrimination. On the
basis of the information before it, the Committee therefore cannot conclude that
the approval of a departure from the development plan in the author’s case
would impose a “disproportionate or undue burden” on the State party.
8.6The Committee recalls that article
25 of the Convention, when referring to the right to health, stipulates that “States Parties recognize that persons with
disabilities have the right to the enjoyment of the highest attainable standard
of health without discrimination on the basis of disability. States Parties
shall take all appropriate measures to ensure access for persons with
disabilities to health services that are gender-sensitive, including
health-related rehabilitation”.
8.7At the same time, the
Convention refers to habilitation and rehabilitation in article 26, and states
that “States
Parties shall take effective and appropriate measures, including through peer
support, to enable persons with disabilities to attain and maintain maximum
independence, full physical, mental, social and vocational ability, and full
inclusion and participation in all aspects of life”, through comprehensive
habilitation and rehabilitation services and programmes, in such a way that
these services and programmes “begin at the earliest possible stage, and are
based on the multidisciplinary assessment of individual needs and strengths”.
8.8In this regard, the Committee notes that the State party, when rejecting
the author’s application for a building permit, did not address the specific
circumstances of her case and her particular disability-related needs. The Committee therefore considers that the decisions of the domestic
authorities to refuse a departure from the development plan in order to allow
the building of the hydrotherapy pool were disproportionate and produced a
discriminatory effect that adversely affected the author’s access, as a person
with disability, to the health care and rehabilitation required for her
specific health condition. Accordingly, the Committee concludes that the
author’s rights under articles 5(1), 5(3), 25 and the State Party’s obligations
under article 26 of the Convention, read alone and in conjunction with articles
3 (b), (d), and (e), and 4(1) (d) of the Convention, have been violated.
8.9The Committee further notes the
author’s claim that, in the absence of an indoor hydrotherapy pool at home, she
will eventually have to enter a specialized health-care institution, and that the
State party did not refute the author’s allegations. In this regard, the
Committee recalls the provision in article 19(b) of the Convention, which requires States parties to
take effective and appropriate measures to facilitate full enjoyment by persons
with disabilities of their equal right to live and participate in their
communities by ensuring that persons with disabilities “have access to a range
of in-home, residential and other
community support services, including personal assistance necessary to support
living and inclusion in the community, and to prevent isolation or segregation
from the community”. The rejection of the author’s application for a building
permit has deprived her of access to hydrotherapy, the only option that could support her living
and inclusion in the community. The Committee therefore concludes that the author's rights under article
19(b)
of the Convention, have
been violated.
8.10Having reached
this conclusion, the Committee does not consider it necessary to addressthe author’s claims under article 28
of the Convention.
9.Acting
under article 5 of the Optional Protocol to the Convention, and in the light of
all the above considerations, the Committee is of the view that the State party
has failed to fulfil its obligations under articles 5(1), 5(3), 19(b), 25 and 26, read alone and in
conjunction with articles 3 (b), (d) and (e), and 4(1) (d), of the Convention. The Committee therefore makes the following
recommendations to the State party:
1.Concerning
the author: The State party is under an obligation to remedy the violation of
the author’s rights under the Convention, including by reconsidering her
application for a building permit for a hydrotherapy pool,
taking into account the Committee’s Views. The State party should also provide adequate compensation to the author for the costs incurred in filing this communication;
2.General:
the State party is under an obligation to take steps to prevent similar
violations in the future, including by ensuring that its legislation and the
manner in which it is applied by domestic courts is consistent with the State
party’s obligations to ensure that legislation does not have the purpose or
effect of impairing or nullifying the recognition, enjoyment or exercise of any
right for persons with disabilities on an equal basis with others.
10.In accordance with article 5 of
the Optional Protocol and rule 75 of the Committee’s rules of procedure, the State party shall submit to the Committee, within six months, a
written response, including any information on any action taken in the light of
the Views and recommendations of the Committee.The State party is
also requested to publish the Committee's Views, to have them translated into the official language of the State party,
and circulate them widely, in accessible formats, in order to reach all sectors
of the population.
[Adopted in
English, French, Spanish, Arabic and Chinese, the English text being the original version. Subsequently
to be issued also in Russian as part of the Committee's annual report to the
General Assembly.]